Caring for children with complex health conditions: Understanding the family perspective
The Frail Young are children with complex, life-limiting conditions. They have a right to enjoy life, grow and learn to the full extent of their abilities. The Health Design Lab is collaborating with this research cluster which aims to create a new, national research agenda and interdisciplinary research teams to support excellent care for these children and their families.
As a first step in collaborating with this team, the Health Design Lab will be designing a set of tools and activities for family engagement to better understand their perspective on the current system of care.
Project Leads: Caylee Raber
Design + Research Assistants: Eugenie Cheon & Sandra Han
Project Coordinator: Nadia Beyzaei